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The Conversation USA

Sky-high drug prices for rare diseases show why Orphan Drug Act needs reform

  • Written by Dana Goldman, Director, Leonard D. Schaeffer Center for Health Policy & Economics, University of Southern California
imageThe FDA headquarters in Silver Spring, Maryland.AP/Andrew Harnick

When Marathon Pharmaceuticals announced in February it would market a drug for treating Duchenne muscular dystrophy for US$89,000 a year, the negative reaction was so intense that the company immediately suspended the rollout. (On Thursday, March 16, Marathon announced it was...

Read more: Sky-high drug prices for rare diseases show why Orphan Drug Act needs reform

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